To sign off, I confirm that at no time did we request that my Mum be taken from us via this wicked and distressing form of euthanasia. But hands-on help is scarce. My pleas were ignored. The list of care given fraudulent. Once he went to hospice, he was never given anything for his terrible pain and my aunt believes he was simply "allowed to die" -- one of their favorite phrases. denied the funeral parlor Becker funeral parlor who also illegally cremated my mother suspicoulsy locked in her room in sunrise NO visitors allowed under the son and varnum ; cremated her NO abilyt ot view her remains NOW my fahter ND HIS priest reported how his wishes for a catholic viewong and mass priorr to cematoini ALSO I called the DOH dept of health wqhich was MY rioght thehy opened a case as " starrving my dad over dosing him and no eye glasses hearing aides such reported twice" the Lawyer wrote a letter DUE TO BRENDA calling the DEPT OF heath She upset the LEGAL counsel fo Valley hospice IN Paramus NJ the legal counsel and and the supervisor an RN joanna hanna : so NOW JOHN Sheehy my dad WILL HAVE NO VISITS as he clearly stasted " I DO NOT know why your father is dying .. dont care and also was stated to Father PAUL NO VISITS for JOHN : he needs ot die alone ; : SO HE DIEs alone NO ONE by his side with a sign over his heaD He was now unconscious due to medicatoins morphine and sedatives every 3.4 hours aide confirmed ; DO NOT FEED HIM ONLY HOSPICE MEDS SUNRISE also attaempted to haVe ME SIGN as this lawyer KNEw sign a " Euthanasia contract " IF YOU feed him or ask about his med YOU wil be asked ot leavE on JLY 9 i gaVe that to polkcie they wenet in for a safety check : THEY deny this ; well here is the contract the officer was kind that is when they started wiht laxative supposoitories all on record ' FROM jluy 5-19 that is what was DONE by a judge 3 lawyers hsi son colleen varnum adn hospice valley hospice who raged as recorded at me on phone just prior to july that july 3 and 4 and for a year MY DAD and I are chatting on phone laughing LOVE YOU BRENDA MISS YOU ; see you soon YES dad I will bring you food they were denying him food the sunrise lied and even attemtped to put him in a psych hospittal : it was so evil WE threatned to sue MY DAD was with his aides and i was outside of window he fell i heard it ; the lawyer wright robert and colleen varnum lied stated " as my dad is heard " I am ok ' and the aides pickiing him UP " they were oof site ' they wrote more lies " HE was in the hallway ( blind deaf using a walder cannot see as they refsued my pleas to JUST give me the scripto for his eye glasses nad his broken hearing aids i will pay and replace NO ) that my dad was in hallway beating up residents ; THE ENTIRE facilyt was ON LOCK DOWN NO ONE COULD LEAVE THEIR APT .. My dad had Parkinson and experienced a urinary tract infection approximately 2 to 3 times a year. morphine given too randomly in elderly patients! English is not our first language so we were pretty much lied to and taken advantage of. The latest Medicare data show that hospice use has grown over the past decade: In 2006, Medicare paid $9.2 billion for fewer than 1 million beneficiaries in hospice care. The fact that folks I respected who had recently gone through the loss of a parent all recommended VNA made it an easy call. The fact is; after months of him being home from the hospital (still in Hospice), I was told by the first Home Care Hospice Doctor that my dads diagnosis (Parkinson) isn't one that would be considered a hospice case. Those nurses came and brought pain killers and other drugs. Patients have to be in bad shape for Medicare to pay the higher inpatient rate that hospice residences charge. CMS should provide more information to the public, especially Medicare beneficiaries, about hospice performance so consumers can effectively compare hospice providers. After what seemed like years of unreliable health-both physical and mental-she seemed to get a boost from knowing death was coming. A new government-sponsored website called Hospice Compare will soon include ratings of different agencies, which will ideally inspire some to raise their game. -Mick Rhodes This too was rough for me to hear. Most already do that, and assist dying patients with dignity and compassion. She actually told me that hospice and my siblings are killing my mom. It's been 2 months since my father passed away. mickrhodes@claremont-courier.com, 2151 E Convention Center Way Avoid at all costs. He believed the doctors had given up on him. He was in a hospice facility for 11 days until he died. WebThe local hospice was celebrating more than 1,800 deaths, at their hands, that had occurred during the past twelve months. The nurse ordered for us to continue giving morphine to my dad every 20 mins. We could come she did. WebSupporting a loved one at the end of their life can be difficult, but you don't have to go through it alone. But at the very end, confronted by a sudden deterioration in my fathers condition, hospice did not fulfill its promise to my family not for lack of good intentions but for lack of staff and foresight. She sat down in her wheelchair, ate a home-cooked Christmas dinner and smiled, laughed and enjoyed herself. I am trying to find a lawyer who will take my case and I pray this doesn't happen to another family. My father died at the age of 73, he had cancer before but he did surgery to remove them and also undergone treatments. She went over their Medicare-funded services, including weekly check-ins from a nurse and 24/7 emergency oversight by a doctor. They should be of sound mind and body. "But I think people aren't prepared for all the effort that it takes to give someone a good death at home.". My moms life was hers. I was in SHOCK. Also, I think all caregivers wether they are family or not should under go evaluation before that give care. We got her enrolled, they brought in tables and chairs and machines and pills. Most comfortingly, she told us if a final crisis came, such as severe pain or agitation, a registered nurse would stay in his room around the clock to treat him. And that's the direction the health care system is moving, too, hoping to avoid unnecessary and expensive treatment at the end of life. After the first 6 months of hospice she was re-enrolled for another 6 months. "For me to say that there's that guilt," she says, then adds, "but I know better. Anyone can read what you share. that is recorded the JUDGE stated " well we all go via this " NO judge no lawyers we do NOT go via this he has NO hospice diagnosis I am an RN BSN even on hopice WE DO NOT starve and euthanized humans He is catholic THE lawyer stole his money then cremated HIM HE had NO authorigyt over MY fathet HIS guardianshp was OVER I asksed ford A MEDIAL for my dad? Im an only child. The cancer doc was taken aback, and revised her prognosis to a year. According to their investigations, the hospice system, which began idealistically in the 1970s, is stretched thin and falling short of its original mission. On Day Two (Sunday), a couple of notable things happened: the hospice seemed to be operating a 'good cop/bad cop' routine as the doctor was replaced by an absolutely lovely older lady nurse who chatted to each family member individually and in wonderfully caring terms explained that 'Mum can no longer take solids or fluids as she is very ill'. He fell and was found by my aunt, bleeding from his head. Until last year, hey found my dad's cancer by Justice over a year ago The supposed preacher lectured about how The new company was quickly on board. When I looked up the agency we had used, its customer satisfaction rate for handling pain based on the companys self-assessment was 56 percent. My father died in 2002, and even then Id only known him for the last 10 years of his life. His voice is jolly and tipsy. Im just tired, honey, she said to me shortly after making her decision. Ultimately, even without pain relief, he was probably more comfortable in his own home, tended by his children, doing our best. Caregiving For A Loved One? How To Get The Help You Need. A Good Life And A Good Death: What Is Palliative Care? as for the answer to your questions, you did a wonderful job of killing him, but I cannot answer whether I am "satisfied with his care" because how could anybody be satisfied with murder? They told us they were there for us, 24 hours a day. I feel the same way about what happened to my Dad. Our youngest sister was also lost due to hospice and I dont know if hospice had her authorization neither. My father, although sick, was much better when he went in. What this person [Health Wyze Media] describes is exactly what my family experienced at hospice when my mother died. What is astounding is it seems to be a standard protocol that they are using to kill off the old people quicker. We talked, but it was nothing special. "Our long-term-care system in this country is really using families unpaid family members," she says. "It does take a toll" on families, says Katherine Ornstein, an associate professor of geriatrics and palliative medicine at Mount Sinai Hospital in New York, who studies what typically happens in the last years of patients' lives. Or they just thought they knew better than me and did not respect my opinion to keep fighting naturally without dehydration and starvation. Am diagnosed as paranoid schizophrenic since my teenage years and this factor may have played a part in them ignoring my wishes completely. Unfortunately it's all too common for what you describe to happen. Mum was starting to come around and was noticeably breathing again. But then, should there be more transparency early on? They will blame the disease and not the overmedicating, starvation and dehydration protocol. But as the business has grown, so has the burden on families, who are often the ones providing most of the care. I didnt realize it then, but that day was here. A tragic end. In those last precious weeks at home, we had tender conversations, looked over photographs from his childhood, talked about his grandchildrens future. I tried to get her to take trips with me to places she loved, but she didnt want to travel. And you know, it can be really ugly and very difficult. At its extreme, sepsis can also lead to dangerously low blood pressure. I am happy to say we did ask for an investigation. Or take the case of Larry Johnsons 87-year-old mother, who had dementia. She was talking last night but the Hospice nurse gave morphine to a family member and is having them give so much every hour. Hospice care is a lucrative business. Worse still, I saw that her oxygen, on which she relied, had been turned off at the dial on the wall. I will admit to you that I was beside myself with terror and as I did this I sang to her, yes sang to her, one of her favourite songs, 'Ain't Misbehavin' by Fats Waller! My Mum had been suffering from renal cancer, which was, apparently, also in her lymphatic system, but of which there were no current mestases in other locations, although the byproducts from her tumour were kicking off a few problems with her lungs requiring her to use a supplementary oxygen supply. Shortly afterwards, the rest of my family arrived in the room. And thats my job.. He ran out of 'insurance days' and 'Hospice' was the only BS option left. Perhaps my Mum would have lived a few days, a few weeks or a few months more if she had not been killed in this artificial way, who knows, but it is my belief that, whilst we should use all the means at our disposal to ease suffering, only God (or mother nature if you don't share my faith) has the right to call time on a person's life and that we are entering dangerous territory when a medical professional has the power to make and effect such decisions themselves. Home is now the most common place of death, according to new research, and a majority of Medicare patients are turning to hospice services to help make that possible. I didn't know ANYTHING about hospice before. She ended up writing an essay about her frustrations with the way hospice care often works in the U.S. Johnston, like many family caregivers, was surprised that her mother's hospice provider left most of the physical work to her. Id always planned on moving into moms house when the time came. My job is to understand that the best I can, fix it when its fixable and curable, address it to the best that I can, but also know that even though technically adequate, sometimes medical treatment can be the source of suffering, also.. Blake Farmer/WPLN Her death wasnt Also, I began taking VNA up on that 24/7 promise they had made. She made many attempts over the years to woo me over to Gods way. WebHospice may have kept your family from experiencing that kind of passing for your dad and grandma. Still, when it comes to where we die, the U.S. has reached a tipping point. As acceptance grows among physicians and patients, the numbers continue to balloon from 1.27 million patients in 2012 to 1.49 million in 2017. But an inpatient facility is rarely an option, she says. He couldn't walk though because he fell. Prescriptions show up at the house for pain and anxiety. The non-hospice caregiver remarked there was never any food for my mom to eat. As researchers in the field look to the future, they are calling for more palliative care, not less even as they also advocate for more support of the spouses, family members and friends who are tasked with caring for the patient. I feel my mother could likely have lived several more years if she hadn't been preyed upon by Hospice Inspiris. I didnt like it. In contrast, Teno says, in her father's final hours, he was admitted to a hospice residence. And it didn't work.". I was in tears. To my surprise, no doctor was available, and it took the receptionist an hour to reach a nurse by phone. "Coordination and cooperation with federal, state and local law enforcement officials on mutual drug enforcement efforts ." ". I am also happy to say that we took numerous photos and more importantly videos without my siblings knowing. "In front of him was his favorite drink, a dry martini," the author writes. We offer competitive salaries and generous benefits package. Again, in shock. By the 28th of December, she was having difficulty getting to the restroom and her shortness of breath was getting worse. She began to exhibit alarming side effects from her ever-increasing reliance on morphine. During that hospital stay, my dad slept a lot and was prematurely put in Hospice. and NOW The judge and lwyers want me silent and the son wants to SUE ME for emotional pain and suffering for reporting this et al THE JUDGEallowed in probate 3 lawyers hos his do this and take his money I have helped so many seniors in my practice i could NOT save MY dad it was a Malpracticing murder we see " murder by hospice we see fraudlulent guardiahsips and administrator ; "" done to milllions of seniors AND NO ONE can DO ANYTHING why is this NOT On the news WE are all aspiritng to be SENIORS, Guest "I guess I've just accepted what's available and not really thought beyond what could be," John says. Few led to any recourse. That would be the last time my sweet mother was truly present with me. Like many Americans, I have a story about hospice care for a loved one. Morphine, every 20 minutes? Starvation, dehydration and overdosed on such heavy medications to kill them fast. CMS now provides such information for nursing homes on its Nursing Home Compare website; a similar offering for hospice on Hospice Compare would help consumers make informed choices. Ontario, CA 91764. His primary nurse, who doubled as case worker, was kind and empathetic. This last 6 months big changes were happening and I began asking questions. He came back and was fine. And it only gets better. Its been almost a year now and she is still alive!! This one was a VA which already has below average care and the nursing home had substandard care with questionable night nurses who were a problem. In my opinion, the ritual 20-25 minute exclusion from the patient's room each morning for nursing duties may carry a sinister, covert purpose, possibly involving moving the patient, creating stress and trauma, especially towards the end of their expected stay, presumably to encourage and speed their demise. John McCasland (right) of Goodlettsville, Tenn., hired a private caregiver to help with his wife, Jean (left), who suffered from dementia for eight years. But he was from somewhat rural Virginia and believed in natural medicines. I was angry, to be honest. hide caption. I don't think I could manage, stay sane, if my job guaranteed me that every single customer I had, Hospice Almost Killed My Father Who is Not Terminal (Medicaid, in home, friend) - Caregiving -Caretakers, elderly care, nursing homes - Page 3 - City-Data Forum Courtesy of Michelle Stacey Here, talk to your father, Carol says. She entered the hospice on the Friday in good spirits, having been told by the MacMillan Cancer Support Nurse (one of the most respected organisations in British nursing) at the general hospital at which she had spent the last five weeks that the hospice, which they had selected, would 'really look after her needs, give her rest and provide relaxation services like massage and physiotherapy' - they did not tell her, nor me, that the hospice's aim would in fact be to kill her as quickly as possible in this case, over just four days. So my sister and I experimented with Ativan and more oxycodone, then fumbled through administering a dose of morphine that my mother found in a cabinet, left over from a past hospital visit. The misconception is that hospice leaves as But it wasnt up to me. Broken "Clock" in the Brain May Explain Alzheimer's, Other Brain Diseases. CMS should take steps to tie payments to patient care needs and quality of care, rather than the current approach of paying a flat rate regardless of how many services a hospice provides, which can create incentives to minimize services and seek patients with uncomplicated needs. You dont sit there with your hands folded and pass away. But mom wasnt up for it. "We really have to expand in general our approach to supporting caregivers," Ornstein says, noting that some countries outside the U.S. pay for a wider range and longer duration of home health services. My name is Kevi Bernier and I swear that this is the truth. A case he had just won and was waiting for full benifits.You wont believe the rest of the facts. I was angry about my Father a Great man who hated to take asprin for a headach he would take one baby asprin. "And I think that probably speaks to the expansion of palliative care in general.". She recently sat them down, she says, to make sure they handle her death differently. It was Aug. 2, 2000 less than two weeks since his admission to the hospice. Our first call went out to a local hospice care provider. My grandfather had metastasized prostate cancer so he was terminal. When my father was dying from complications of dementia and diabetes, hospice caregivers sat with him, provided pain relief, and helped him be comfortable. It is FREE! A few high-profile advocates have even started questioning whether hospice is right for everybody. They werent perfect, but Ms. Griffin and Dr. Dauwalder and the rest of the team worked tirelessly to try and soothe her suffering. I checked in again with John and Velez (Jean's long-time private caregiver) this winter. We brought him to the ER, and they said he doesn't need surgery but he will be in pain for a while. He had no terminal illness just very bad bed sores caused by the same hospital. I thought wed have her for another summer. The final thing that I've left out from this report are some of the actions of my own family members, both in order to protect their confidentiality, but also because some of us seemed to actively help the hospice achieve this quick despatch. When my father was dying from complications of dementia and diabetes, hospice caregivers sat with him, provided pain relief, and helped him be comfortable. If a lawyer does not take this case, I will write a book. Go figure. So he has had to drain their retirement accounts to hire Velez, a private caregiver, out-of-pocket. Im too overwhelmed and too tired just trying to keep my disabled sons alive. To add to this case study pool, my mother (70) was killed by a UK hospice last week through the method of dehydration and starvation, made possible by use of an intravenous morphine syringe driver and continuous injection of sedatives through an arm port. Coneigh Sea is a social worker from Murfreesboro, Tenn., who cared for her husband as he died on home hospice. They took all of his medicine away when he was fine the day before. I managed to come back after a few day's with my daughter's and they are horrified at what they see. If you want to get notified by every reply to your post, please register. Now, she wants to make sure her children don't do the same for her. Sniffing Out Porkie Pies: Can You Tell If A Child Is Lying? It is now the most profitable type of health care service that Medicare pays for. According to Medicare data, for-profit hospice agencies now outnumber the nonprofits that pioneered the service in the 1970s. Enough time has passed since then that the mental fog she experienced while managing his medication and bodily fluids mostly by herself has cleared, she says. I couldnt promise he would get to see his childhood friends from England one more time. My dad finally woke up. Hospice stays connected to the family. WebMorphines reputation as a killer underscores one of the more persistent myths surrounding hospice care, namely, that it serves as a grey market euthanasia service for the Immediately both mom and I felt the anxiety lifting. She stopped talking by this time but was still engaged in every way. WebHospice Killed My Father. Its not pretty, Ms. Griffin agreed. She just wanted to be still, in her comfort zone, which mostly meant hanging around her Pomona home with occasional lunches and dinners out. Itd pretty much always been just mom and me.I couldnt imagine my life without her kindness, caring and humor. We were arrested in our front yard for a false charge that was latter dropped because I threatened to sue hospice. Sidestepping home hospice typically means paying for a pricey nursing home or passing away with the cost and potential chaos of a hospital which is precisely what hospice care was set up to avoid. I was told by the NH staff that she was being fed her other meals, though my mother said that she had nothing to eat or drink all day. I had help, though, from my wonderful cousins Chris, Caroline and their son Ben and my incredibly selfless and kind girlfriend Lisa. Ive never cried like that before. To my horror, she was propped up in the bed with her head snapped backwards over the pillow, looking up, mouth open wide as if gasping for breath - I believe she had partially swallowed her tongue. At the kitchen table of her home outside Nashville, hospice patient Jean McCasland is refusing, on the day I visit, to eat a spoonful of peach yogurt. Thats because after hearing for years about the unnecessary medicalization of most hospital deaths, I had called an in-home hospice agency to usher him off this mortal coil, as my literary father still liked to say at 83. WebHospice care: the story of a mothers passing (Claremont Courier, March 2017) My sweet mom passed away January 8 at the relatively young age of 74. Its a beautiful place.. Hospice and the Death Cults of Modern Medicine, Hospice Revisited: This Time With An Undercover Recording Device, 'The Cancer Report' Documentary from Health Wyze Media, Audio: Modern Euthanasia and Colloidal Silver (Episode 38), Tragic Letters From the Families of Hospice Victims, If U.S. Healthcare Had a Truly Free Market. Hospice allows a patient deemed to have fewer than six months to live to change the focus of their medical care from the goal of curing disease to a new goal of using treatments and medicines to maintain comfort and quality of life. Growth in the use of hospice makes it even more important to take action now. Since her diagnosis, I had a handful of friends reach out and suggest we use VNA Hospice & Palliative Care of Southern California. Some are signed up for hospice without their knowledge, including some individuals who are not terminally ill. When she finally said she was tired after about an hour and slipped off to sleep, I bawled. I travelled with Mum to the hospice in an ambulance. Even when hospice took over, he still found he needed the extra help from Karrie Velez (center). I used a sponge to introduce water to her lips and mouth. My dad passed away few mins after the nurse from hospice came. "I'm not anti-hospice at all," says Joy Johnston, a writer from Atlanta. A physician assistant prescribed drugs for pain and constipation. Shocked by this the caregiver and I would bring food. My siblings decided to take care of our mom. My siblings are there full time. Her oncologist was optimistic that with hormone therapy-mom dismissed outright the possibility of chemotherapy after having seen her sister and mother both devastated by the treatments she could live another three or four years, with little side effects. They sent him to hospital on Sunday and by Tuesday, they said he wasn't responding to antibiotic and they wanted to put him in hospice. I couldnt promise that the book hed been working on would ever be published. Generally, by the time cancer moves into the bones, especially in an elderly patient, they ARE terminal. For the last six months my mom only ate when the non-hospice caregiver and I were there and was not given food while my siblings were there. over 7 months ago, Guest She agreed that this constituted a crisis and should trigger the promised round-the-clock care. She came out and My mom's appetite was great. And that, I think, is what I came to respect most from these people: the day-in, day-out reality that all their patients going to die, and usually soon. We uncovered multiple abuses in our investigations: Hospice recruiters inappropriately promised Medicare beneficiaries free housecleaning and other services that are not provided through hospice without telling them they would be signed up for the hospice benefit. The nurse did not come at 8 a.m. Or 9 a.m. Hospice care workers are with people at their most intimate, vulnerable moments of their lives. Seriously, and we wonder why our water supply is full of drugs?! That same hospice woman and I remember her name well that same woman without our knowledge took our mom who was then 80 to the courthouse and she lied and said she was a family freind for years and that I was acting angry.And I was but not in a threatening manner. Her urine bag was dark and when I pointed this out to the nurse, she said "She's not dehydrated." He stayed in the hospital for 2 nights and came back home. How often you administer it and the dosage vary depending upon the means of administration. "Don't you do that.". When his case worker was back on duty, she told us apologetically that the nurse on that shift had come down with strep throat. She hands off the phone. This is your turn, for what follows are some of the messages that we have received from our readership about Hospice.
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